I dont know if you are reading this anymore but maybe you culd try acupuncture. Appointments 216.444.6601. My Well being was/is suffering greatly, my right side pain can travel round my back which has impacted me being able to run my right eye feels heavy and achy every day like I havent slept at all but my left doesnt. And finally, don't be so hard on yourself. Chronic Digestive Issues -- Not IBS, Not Crohn's. The symptoms of endometriosis can vary. My eyesight wasnt the best even when I was 7 years old, but started to worsen in my teenage years. She had a hysterectomy with ovary removal a year ago and the cysts immediately stopped growing, but they were large enough by then to be causing pressure and discomfort so she had to have eye surgery to remove them. Part of HuffPost Wellness. Just this past year I started getting floaters and white flashes of light. Even the women living with endometriosis don't have all the facts (Picture: Getty Images/iStockphoto) For many women it takes years to get a diagnosis of endometriosis, but learning the cause of . I suffer from endo and adie problems and I have blue eyes. You may also experience nausea, vomiting and bowel obstruction, notes Dr. Casillas. And now I am having heart issues, where my heart is pounding and racing, tachycardia, severe vertigo, periods of becoming catatonic, tremors, and what feels like a seizure. I set my appointment with my gynecologist and he was my answer. . Endometriosis might also cause: heavy periods. Yours ~ Lisa. Pleasant, right? So my gynacologist booked me a hysterocopy to insert the coil and remove the polyp at the same time they did a laparoscopy. My periods from my son being born have progressively gotten worse (42 now) they are heavy and painful and I loose large clots most months some months just small clots. I have tried to be strong but behind my make up you can see all the stress and worry on my face. If you're sitting at your desk wielding a hot water bottle and struggling to stand, should you even be there? This is what my flare-ups look like: a painful, swollen, bloated stomach. Sometimes it can be hard to figure out if it's migraine or endo symptoms. bloating. There is no shame in needing a day to get on top of the pain and rest, and the best thing you can do for your working life is trusting your boss and filling them in on what's really going on. It's a simple and safe imaging procedure that may be ordered if you're experiencing symptoms associated with endometriosis. I am very sensitive to the sun light. That's a long time for someone to be in pain and in the dark. Women experiencing painful bowel movements, diarrhea, constipation, chronic bloating, or sensitivity to certain food items may be dealing with this medical condition. These types of "cramps" are absolutely not normal. I got out of bed to find blood filled up in my eye socket and running down my face. Although not a diagnosis of Endometriosis on the eye, an abstract presented at the 15th Meeting of the European Neurological Societydiscussed a young woman who had complaints of a chronically dilated pupil, which was later disclosed as Adie Tonic Pupil, a neurological condition, which may be caused due to inflammation which affects the autonomic nervous system (which deals with your eyes). Bindi Irwin has been in the public eye since she was a child. Pain in the pelvic area, lower back, or legs. Im sorry for the following but I want to share in case anyone can help guide me in support I need to ask for. Im loving your comments this morning! He said Id make the medical journals as it was a very rare manifestation of Endo. pain during or after sex. New research suggests that phytoestrogens might actually be good for endo patients, as phytoestrogens hinder the body's natural estrogen from attaching to cells, but more research is needed to fully understand how soy affects women with estrogen dominance. I saw a patient whose vision reduced to 6/12 without any sign or symptom.she was referred to a general hospital for further checks and it was found that she had endometriosis.Fast forward to her recovery from endometriosis she came bk to check her eyes and obtain reading glasses.on checking her visual acuity her vision had returned to 6/6 which is the 100% reading line.Which means endometriosis affects or reduces vision too. For example: painful periods. Symptoms of endometriosis. And its okay to be stressed and worried. Now I'm only new to this endo life, and I'm absolutely no expert you'll need a doctor for that but what I can tell you is if you are struggling, you are absolutely not alone. There are many amazing communities online who struggle with pain and these are good places to find people who understand what you're going through so you don't feel so alone. And sometimes a fluid comes from my eyes that seems like it is mucus, like from my nasal passages. Us girls are taught that periods are painful, so month in and out, when those familiar signs rear their ugly heads, we know what to do. Endometriosis can also cause infertility. Another interesting study published in 2014 discusses the possibility that there is a link betweenthe color of your eyes and the possibility of having deep-penetrating Endometriosis. . Endometriosis should be considered when women of any age present with one or more of the following symptoms: Chronic pelvic pain (6 months); Dysmenorrhoea (that affects quality of life); Hormonal/cyclical gastrointestinal symptoms (e.g. I have problems with maintaining weight, body temperature, and strength. It's hard enough being a woman without the debilitating pain that can come with it. Trying to live your life while juggling these signs of endometriosis can be overwhelming. The symptoms of endometriosis can vary from one woman to another but the most common symptom is pelvic pain and painful periods. Endometriosis occurs when these cells grow outside the uterus in other parts of your body. Handing over referrals, my doctor said, "but I still don't think you have it". When do I stop pouring money into my uterus? While, like endometriosis, there is still very little known about T3 and reverse T3 thyroid hormones and how they affect the body, studies do show that it's thrown off balance by chronic illness and stress -- like what you'd experience if you'd been living for most or all of your life with an undiagnosed reproductive disease. Hoping your recovery is as painless as it can be Sending you much love ~ Lisa. I was doubled over with sever cramps. But we had no sex life without the most unbelievable pain for me. Makes my skin crawl. Im speechless iv never put two and two together. This is likely because many more OB/GYNs are trained in lasering off enough endometriosis for a woman to get pregnant than are trained to preform surgery to remove (read: cut out) endometriosis from any and every organ it is attacking. And I feel like I have missed my kids growing up. Sometimes the lesions can be near invisible. I experienced suicidal thoughts, insomnia, and severed mood swings. Needless to say he was a gentleman until I reached 18 years old! This can impact fertility, so it's important . I was referred to a gynacologist but told my option would be the coil. The mother-of-one has revealed how her recovery journey is going one week after she shocked the world with news that she had suffered symptoms of endometriosis for several years. Id never heard of it. Is there a connection to my history of very recurrent candida (vaginal thrush)? That went on for 6 months but got controlled after. Accessibility There is, however, a shining light in this. Where my left pupil is bigger than the other one, is there a link to endo? Should get results from operation after surgery and results from Neurologist if there isnt a problem after ten days if there is a problem I would imagine I will get a phone call. My doctor prescribed Oralissa. When the cul-de-sac filled with blood, it pressed on my rectum and cervix, causing intense pain and worsening my constipation. Ive thought about it, but then dont want to end up in some database somewhere for God-knows-what to happen to my date BUT I am still oh so curious!! (LogOut/ Abdominal pain and bloating. READ MORE: 'I've collapsed from pain': Aussie women share the brutal reality of endometriosis. This post was published on the now-closed HuffPost Contributor platform. Im ophthalmologist in Romania and Ive seen today a 28 year old woman , stage 4 endometriosis , with subcapsular cataract both eyes and epimacular membrane both eyes. Iv had 7 operations n nothing helped. Because my lifelong endometriosis-related complaints mostly had to do with digestive pain (more on that later), multiple doctors felt the need to test me for food allergies, especially the increasingly trendy "gluten intolerance." Nausea. Tell your boss. Which in return will feed this dreaded disease. As I got worse and different doctors arrived at more and more confusing conclusions ("you have celiac disease no matter what the test says," "it's your thyroid even though your T4 is in the normal range," "it's a rare autoimmune disease without a cure, so take this diet pill and stop eating dairy," "it's the way you walk") I turned to the Internet to try to solve the riddle of my illness myself. Anyway. The second best decision I made that week. I have not had a diagnosis and am really on the edge wellbeing wise. 2020 Apr 24;27:e00210. There was nausea, a swollen belly, hot and cold flushes, mood swings, fatigue, bowel and bladder issues, fevers, loss of appetite. Ive never seen a specialist in the endo field that looked so worried. This may indicate that there is a link between the genes that determine eye color and Endometriosis. Pain when passing urine. We reach for the hot water bottle, the pain killers, we tuck ourselves under the doona with chocolate and re-emerge days later, with colour back in our faces, completely up to date with. Please enable it to take advantage of the complete set of features! (LogOut/ I gave blood spots on my pupil and floaters like a lava lamp (its all i can see black floaters and everytjing else is dark ) there was no reason or cure for this. A common, though not universal, site for endometriosis is the digestive system. I had a lot of my womb, but not all removed, parts of my bowel, a sacral neurectomy, I cant remember all of it and I wasnt given a report afterwards.. It has helped me with bad menstrual and eye problems (thats how I found this conversation, trying to find information on what is going on in me). A lot of them. I would like to get more information about this. Truly, endometriosis is a public health crisis - and a key health initiative needing further promotion, understanding, research and empathy. Theres a connection to allergies, food intolerances, other inflammatory conditions and so on does this explain me developing seasonal hay fever and occasional eczema a few years ago after never having either before? However, endometriosis can also affect other body areas. Hi my name is Donna I am stage 4 with endo its everywhere and had a partial hysterectomy Im hoping for my ovaries to be removed soon. Then I had to play like 4 doctors over until finally I can get progesterone injection. What is odd demyelination is an autoimmune disease and I have read endo could be an autoimmune disease!!! Prior my surgery, 7 years back I started going to doctors and specialist as my eyes get really red and they hurt a lot. Endometriosis happens when the endometrium, tissue that usually lines the inside of your uterus, grows outside it. And if your GP does that, find another, and then another, and keep going until you find one who will take you seriously and help you find ways to monitor and diagnose the reason your pains. ( I now believe that was endometriosis).. Women with infertility might be referred to a reproductive endocrinologist or a fertility specialist. Ovulation irritated my endometriosis in a way it hadn't been irritated before. Its 6/36 now, and I have a grey spot in my left eye obscuring my central vision.. Hmm, I have blue-grey eyes and stage 4 endometriosis. Shall keep you posted. https://www.webmd.com/drugs/2/drug-154305/estradiol-dienogest-oral/details/list-sideeffects. Constipation. irregular or heavy menstruation, painful urination, or. Also, sometimes the disease cannot be seen by the naked eye. Remember what I said about a grim reality? Rough, huh? It's a vicious cycle, to say the least. My sister who has held my hand as I screamed in pain and knelt over toilet bowls month in-and-out, and my Zia who nagged me every day to see a gynaecologist. ), Blue-grey eyes are beautiful! Unable to load your collection due to an error, Unable to load your delegates due to an error. Rare symptoms of endometriosis include chest pain or coughing blood due to endometriosis in the lungs and headache and/or seizures due to endometriosis in the brain. I hope this helps! I went through 7 hours of surgery. My sister who has held my hand as I screamed in pain and knelt over toilet bowls month in-and-out, and my Zia who nagged me every day to see a gynaecologist. Fast forward to the age of 30 i came of the pill to get pregnant we had a miscarriage but then luckily concord at 32 we had our daughter when she was 6mth we conceived our son my periods had started back as she was weaned at 17weeks so breast feeding was minimal. A woman with undiagnosed endometriosis is a woman constantly Googling things. I also get cystic acne, infections that wont heal, and infections around hair follicles. He said I was lucky to come to him as he had a particular interest in gynecology. Please take what I say with a grain of salt. heavy menstrual bleeding. In most cases, the abnormal uterine lining will shed when a woman starts her period, which leads to bleeding, inflammation and . Have you heard of anyone havingEndo on or near their eyes? Always the left eye and on the inside I mean the nose-side. 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